13 Things You Should Know About Grief After Miscarriage or Baby Loss

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loss of a babyTrigger warning: The following post is one which discusses pre-term and neonatal loss and the process that many women and families go through when they have lost a baby.  If you are feeling vulnerable at this time and this post does not speak to your experience, consider not reading it as it may cause you distress at a time when you are trying to regain strength.

Losing a baby though miscarriage, elective termination, stillbirth, childbirth, after a NICU stay, SIDS, or any other time is, without a doubt, one of the most difficult experiences that a parent will ever endure.  There are no words to explain the depth of despair that a parent goes through when attempting to understand the shift that occurs when all hopes and expectations suddenly drop out from underneath anything stable. It is an experience that many will never need to make sense of and also one that many others will swim through unexpectedly.  It is tragic and drastic and totally and completely unfair and yet thousands upon thousands of families find themselves in this position each year.

Here is what we know:

  • Approximately 15-20% of confirmed pregnancies end in miscarriage
  • In the US, the rate of stillbirth is documented as 1 in 160-200 pregnancies
  • In the US, the rates of SIDS affects between 5,000-7,000 infants every year
  • In the US, approximately 11,300 infants die within 24 hours of their birth each year

I give these statistics not to scare you, but because it is important for those mothers who have lost their children to know that they are not alone; to know that there are many others out there who are needing to navigate this loss too.

I have worked with countless women in my office as they try to manage the unfamiliar emotions that surround loss, and I have learned a great deal from these phenomenal moms.  I also have a dear friend and colleague who lost her daughter hours after birth and she, too, has honored me with her insight, pain, and eventual healing.  With the information gathered from both my clients and my dear friend (who is now a clinician in San Francisco specializing in perinatal loss), this post today is written for all of the moms out there who are trying to navigate the unfamiliar postpartum experience while also grieving the loss of a child that never made it home or past that first year mark.  For these moms, postpartum distress is complicated by the process of grief, and sometimes it is hard to make sense of what goes where in this unimaginable puzzle.

So, if you are one of these women, here is what I want you to know:

  1. Some women who lose babies through miscarriage are able to move through this loss freely, while others feel deep despair at this loss.  There are no “shoulds” in this.  No right way to feel.  If you feel strong and grounded and ready to move forward after a miscarriage that is totally valid.  If you feel deep loss and grief then that, too, is appropriate.  No one gets to tell you how you feel except you.
  2. Any time a body goes from being pregnant to not being pregnant, there is a significant shift in hormones that can affect brain chemistry.  Postpartum depression, anxiety, and other mood disorders can affect a mom regardless of the point at which a baby is delivered.  You are likely in a position where you need to process through grief while also having a vulnerable brain chemistry.  This can make the experience of healing feel impossible for many.
  3. Grief is a normal process and includes a shifting of emotions such as denial, anger, bargaining, depression, and acceptance.   Grief felt after the loss of a baby is not necessarily depression and while there may be some overlap, it should not be treated as such.  If you feel angry one day and dissociated from your loss the next, this is normal.
  4. If you are not aware of a shifting through the stages of grief and continue to feel debilitated by your suffering, there may be an element of clinical depression or anxiety that needs to be addressed.  “Healthy” grief moves, but sometimes it can develop into relentless depression that requires more specific treatment.  Many moms will experience depression that includes feelings of guilt, shame, self-doubt and sometimes suicidal ideation.  Regaining a sense of self, hope, and trust is important to one’s healing after a loss such as this. [Read more...]
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When Hope Is Hard To Come By During Postpartum Anxiety

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I'm Blogging for Mental Health. I received so many great submissions for the Mother’s Day Rally for Moms’ Mental Health. SO. MANY. And because of the limited number of slots I wasn’t able to include all of them. Still, there are a few other people that I think it’s important for you to hear from. This letter is from Alyssa, Warrior Mom and postpartum anxiety survivor. I think her words are very appropriate for today, which happens to be the American Psychological Association’s Mental Health Blog Day

Dear Moms,

I want to say: I know.

I know what the weather’s like. I know it’s stormy, and rainy, and cold and gray. I know your umbrella is broken, you packed the wrong jacket, and the forecast doesn’t look better for days, weeks or months.

I know.

There are days when it feels like nothing will ever be better. You will never feel like you again. Things will never return to the way they once were. Hope is hard to come by when you are overwhelmed by postpartum anxiety and related illnesses.

I am not here to say, “oh it gets better!” with a fake smile and shiny white teeth. I am here to look you in the eye, put my hand on your shoulder and reassure you that your sun will shine again. And until that day, we have a spare umbrella, a sweatshirt to share, and some warm tea to get you through.

I spent a long time, too long really, hiding from myself. I fought my darkness, thinking that I could do it on my own, and that my anxiety and intrusive thoughts would just go away. They didn’t. But I continued to hope they would, instead of confronting postpartum anxiety head on. In retrospect, I wish desperately that I would have addressed it sooner. Why did I suffer quietly? Was it shame? Fear? Truthfully, I don’t know. I just know that I wasn’t ready to acknowledge it as reality.

When I started seeing a therapist, I was given a diagnosis of PTSD, postpartum anxiety and a little bit of postpartum OCD. I had a traumatic c-section, which I thought was the root of my issues. However, once we dealt with the trauma, and watched it dissipate, more anxiety and OCD tendencies came out. The intrusive thoughts got even stronger. So, just when I thought we had “talked away” the real issue, more problems literally overwhelmed me. I was convinced I was broken, and that I would feel this terrible forever.

Until the day that I had an a-ha moment. I don’t know that everyone has these moments. I was talking with my therapist, bemoaning my reality. I am sick of feeling this way. I want to know when it will stop. Why can’t it all just go away? She looked at me quite simply and said, “Have you ever thought to thank your anxieties?” I am sure I looked at her like she had 14 heads and 5 hideous noses. She continued, “You went through something terrible. Your emotions are valid. Your anxieties are valid. Your mind is so aware and so hell-bent on protecting you that this is what it’s doing. Is it out of control? Yes. But how amazing, how lucky you are to have a brain and a body that cares so much for your well-being that it goes to such great lengths to ensure nothing like this happens again.”

It wasn’t that statement that fixed me. Truth be told, I am not “fixed.” I still feel my anxieties daily. But after that day, I started reframing them. Acknowledging them. Thanking them. It was so much easier than fighting a losing battle.

Today, I am a proud mama. I love my baby girl more than anything. I still think at least 200 absurd thoughts a day, and occasionally, on bad days, the intrusive thoughts are strong again. But my darkness is gone. Anxiety is a lonely, cold, terrible place to be, and I couldn’t let it be my reality. Now? It isn’t. It’s a part of my reality, but it is the same way any of my other character flaws (poor communication, bluntness) are.

You will be here, too. I know you will be. I believe in you, and I trust that you will find the same support I found. Look for it anywhere–close family, trusted friends, here on this very website, full of amazing resources and reassuring voices. Know that we are here for you, rooting for you, holding your hand. Know that there is nothing to be ashamed of. You are a great mother. You are a worthwhile person. And YOU will be YOU once more.

With all my love and hope,
Isha
www.everydayisha.com

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PSI’s Mental Health Blog Hop & Other PPD News

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I’ve been traveling for several weeks in a row and also trying to get the Mother’s Day Rally ready, so I’ve been remiss in letting you know about the PSI Blog Hop. To help raise awareness of maternal mental health month, you can write your own blog post and link up to the blog hop throughout the month of May. Here are instructions on how to participate, and here is an example of a Blog Hop story from PPD advocate Ivy Shih Leung. Be sure to check it out!

Other news:

* The Manhattan JCC will host a special event on June 4th from 7-8:30pm entitled “Pregnancy & Postpartum Depression and Anxiety: More Than Just the Baby Blues.” Featured speakers include Dr. Margaret Spinelli and Sonia Murdock, founder of the Postpartum Resource Center of New York. For more information, or to register, please call 646-505-5708.

* The 2013 Strollerthon to benefit Postpartum Education and Support will be held on May 18th at Fred G. Bond Metro Park in Cary, NC. For more info or to register, click here.

* The University of North Carolina has just launched a five-year study looking at the role of oxytocin in postpartum depression and bonding between mothers and babies.

* Abbie Goldberg, professor at Clark University, received a $718,770 grant from IMH to study postpartum mental health in heterosexual women, lesbian women and those who have a history of relationships with women but are partnered with men at the time they become parents.

* Australia’s specialist helpline for moms with postpartum depression (or postnatal depression as they call it down under) is in desperate need of funding after a 70% increase in calls.

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Texas Children’s Hospital’s New Endowed Reproductive Psychiatry Chair

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Texas Children’s Hospital has announced the establishment of the Maureen Hackett Endowed Chair for Reproductive Psychiatry with a $2 million gift from Houston philanthropists Maureen and Jim Hackett. The endowed chair will benefit The Women’s Place – Center for Reproductive Psychiatry at Texas Children’s Pavilion for Women. Dr. Lucy Puryear, medical director of The Women’s Place, is the inaugural appointee of the endowed chair. She is a board-certified psychiatrist specializing in women’s reproductive mental health. She is also an associate professor of obstetrics and gynecology and with the Menninger department of psychiatry and behavioral sciences at Baylor College of Medicine. The purpose of the endowed chair is to support treatment and research initiatives that address the mental health issues unique to women and to aid in eradicating the stigma associated with mental illness.

The Women’s Place is one of a handful of programs of its kind in the nation offering collaborative treatment of women’s reproductive mental health issues within a women’s hospital setting. Located on the third floor of the Pavilion for Women, the center is designed to address issues such as postpartum mood or anxiety disorders, mother-baby attachment difficulties, severe premenstrual symptoms and emotional changes related to menopause.

This is fantastic news!! Dr. Puryear is amazing, and I know she has done and will continue to do wonderful things in Texas to support women with perinatal mood and anxiety disorders.

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