Postpartum Psychosis Help: Where Can Moms Go For Help? [Infographic]

Postpartum Progress is often asked where moms can go for postpartum psychosis help. What if you have psychosis or severe postpartum depression and need hospitalization or intensive treatment?

There simply aren’t enough beds and spaces at perinatal inpatient and partial hospitalization/intensive outpatient programs in the United States compared to the number of women who will need them each year.

Why a perinatal unit? Just ask the moms who have been hospitalized for postpartum psychosis or severe PPD.  We’ve talked to moms placed in general units with whom not a soul ever mentioned the words perinatal or postpartum. No one talked about role transitions or becoming a mother. No one offered lactation support. Some had no access to supplies like pads for post-birth bleeding. Some were told they had to quit breastfeeding. Many were not allowed to see their babies at all, or only for brief moments, during their hospital stay. Most were the only person there with a maternal mental illness.

We know that specialized programs for women with perinatal mood and anxiety disorders work. We know taking care of both mother and baby during pregnancy and first year is critical to health. These programs are led by people who are experts in maternal mental health. Who understand how medication affects pregnancy and breastfeeding. They make sure that mother-infant attachment is supported and encouraged. And they readily provide supplies like breast pumps and safe places to store breast milk.

We wanted you to see how few of these place there are in the United States, because this matters. Mothers deserve the best possible postpartum psychosis help, and not enough of them are getting it.

postpartum psychosis help

 

Postpartum Psychosis Help (as of September 2016)

California – Huntington Hospital Maternal Wellness Program (Pasadena), El Camino Hospital MOMS Program (Mountain View), MemorialCare Perinatal Mood & Anxiety Disorders Program (Long Beach)

Illinois – Perinatal Intensive Outpatient Program of AMITA Health (Chicago area)

Michigan – Pine Rest Mother & Baby Program (Grand Rapids)

Minnesota – Hennepin Mother-Baby Program (Minneapolis)

New York – Zucker Hillside Perinatal Psychiatry Unit (Glen Oaks)

North Carolina – University of North Carolina Perinatal Psychiatry Inpatient Unit (Chapel Hill)

Pennsylvania – Drexel Mother Baby Connections (Philadelphia)

Rhode Island – Women & Infants Day Hospital (Providence)

 

Special thanks to Heather, Candice, Laurie, Laura, Catherine, Samantha, Stephanie, Lisa, Jess and many more members of the Warrior Mom® Community for helping us put this project together. 

PPD & Suicidal Thoughts: So Glad To Be Alive 15 Years Later

postpartum depression recoveryMy son was born 15 years ago today. My first child, the one with whom I had postpartum anxiety/OCD, the experience that eventually led me to start Postpartum Progress. I find it kind of magical that his birthday is occurring during National Suicide Prevention Week. I remember having suicidal thoughts when I was struggling with maternal mental illness after his birth.

To be clear, I didn’t want to die. It’s not that I didn’t want to be alive. Or to be my kid’s mom. I was just so scared. So terrified I might hurt him. I was worried I might ruin his life. That I was a terrible, horrible, no good very bad mom. And I was in so much pain. This super dark place that I was convinced I’d never be able to leave again – I’d be locked in there forever.

It’s very easy to become convinced — or at least toy with the idea — that the only way out is to stop existing.  I’m sure this is beyond hard to understand for people who have never been in the dark place. It’s not logical. Yes, we are fortunate. We may have very wonderful and loving people around us. Yes, there is help. No, we’re not alone. It’s just that when you are in a pain that you can’t see living with for another second you can come to believe that leaving this earth is the answer.

It isn’t.

I know this. I’m so grateful I got to hug and kiss my boy this morning on his birthday and tell him how proud I am to have become his mama 15 years ago. It turns out I’m actually a pretty good mom. I did leave that dark place thanks to the help of others. Even though my career as a mother had a really crappy start, it has rocketed upward ever since. I have experienced so much joy. Parenting is still hard, of course. I’m not perfect and neither is life. There have been moments of pain. Frustration. Self-doubt. But the moments of joy have outweighed all of it.

It’s very special to me that Jack knows he’s the baby in the Warrior Mom logo and he’s proud of it. PROUD, y’all. He’s not ashamed that I had postpartum anxiety/OCD. He doesn’t question whether I loved him as a baby. He KNOWS I did and he knows what I had was a very common illness and that it wasn’t his fault or mine.

He loves me and I love him, and that’s the biggest “F— YOU” to postpartum depression that I know of. We win, PPD. We. Win.

I want you to know that if you are a pregnant or new mom struggling mightily right now and you have had suicidal thoughts, you aren’t alone. The Warrior Moms of Postpartum Progress are here with you, and many of us have had the same exact thoughts. We’ve been in that place where it felt like there was no way out. We understand, and we love you. There is help. If you don’t believe me, you need to know that no one could convince me there was help either, and yet THERE WAS. I didn’t believe I’d get better either, and yet I DID. Postpartum depression and related illnesses are still an awful experience. I know that. I just ask you to please be willing to accept the help that is out there. It’s worth it.

What To Do If You Or Someone You Love Is Having Suicidal Thoughts

As the American Federation for Suicide Prevention explains, suicide often occurs when stressors exceed the current coping abilities of someone suffering from a mental health condition, like depression. There are people who understand and know how to help you, no matter what you are going through or why. If you are in crisis or having suicidal thoughts, PLEASE call 1-800-273-TALK (1-888-628-9454 en espanol).

A Look at Pregnancy And Suicide During National Suicide Prevention Week

pregnancy associated suicideSince it’s National Suicide Prevention Week, I’d like to focus on a very critical issue: childbirth, pregnancy and suicide. (Trigger warning: If you are feeling fragile right now and think a discussion about the loss of new mothers will upset you, you can skip this one.)

I want to highlight an important statement made by Nancy C. Chescheir, MD, editor-in-chief of the journal Obstetrics & Gynecology, in her editorial in the September 2016 issue:

“… deaths from violent causes (motor vehicle accidents, homicide, suicide, and substance abuse) occur at a rate of about 15 per 100,000 live births, whereas deaths from the four leading pregnancy-related causes of maternal mortality (hemorrhage, embolic disease, hypertensive disease, and sepsis) occur at a rate of about 4.5 per 100,000 live births. Thus, the rate of maternal deaths from violent, pregnancy-associated causes was more than three times higher than those from the major pregnancy-related causes.”

These words in Chescheir’s editorial were made about a study conducted in the state of Illinois on the causes of death of women during the pregnancy and postpartum periods, but they are relevant to us all. Suicide leads to the loss of new mothers at least as often as some of the most common causes of maternal mortality. So why don’t we pay more attention to postpartum depression? Why don’t we invest more?

Part of the problem is in our country’s history of even tracking data on the death of pregnant and postpartum women.

It wasn’t until 2003 (yes, you read that right, 2003!!!!) that the U.S. Standard Certificate of Death began to include a checkbox to indicate whether a woman who had died had been pregnant within the last year. The checkbox was important because it helped to improve data on women whose causes of death might have had something to do with pregnancy or childbirth. Still, some states use that checkbox consistently and some don’t, which means we don’t have a completely accurate set of data.

Also, you might be surprised that the US doesn’t consider suicide in the first year postpartum as a pregnancy-related death. This is important because most of the news, awareness-raising and funding you see related to maternal mortality in our country has to do with pregnancy-related deaths.

What are those? The definition of pregnancy-related death is the death of a woman during pregnancy or within one year of the end of pregnancy due to a pregnancy complication, a chain of events caused by pregnancy or birth, or the worsening of an unrelated condition in the mother due to pregnancy or birth. This includes most of the things people talk about when they talk about maternal mortality, such as eclampsia, infection, embolism, and hemorrhage (bleeding out). Again, suicide in the first year postpartum is NOT considered as or counted as a pregnancy-related death in most places. Only causes of death that are “biologically related” to the pregnancy count.

Pregnancy-associated deaths, on the other hand, are deaths of women that occur during pregnancy or in the first year postpartum that are not necessarily “biologically related” to pregnancy and childbirth. They include motor vehicle accidents, homicide, substance abuse and … suicide.

I don’t know about you, but I’m having a hard time understanding why at least some suicides in the first year postpartum are not counted as biologically related to pregnancy and childbirth. I personally consider postpartum depression VERY MUCH a complication of childbirth. I don’t understand why suicide would be lumped into the same category as accidental car crashes when it comes to the death of new moms.

In some states conducting maternal mortality reviews, this thinking is starting to change. A recent Arizona maternal mortality report notes, for instance, that “… practice is evolving to the extent that if [a suicide death] occurred within the first 42 days postpartum and the woman had made suicidal threats or ideations, the [suicide] should be considered pregnancy related.”

So how does suicide rank when it comes to causes of maternal deaths?

A study published in Obstetrics & Gynecology in 2011 by Palladino et al found that the rate of death from suicide among pregnant and new mothers is 2.0 (2 out of every 100,000 births). Now compare: The rate of deaths due to hemorrhage/placenta previa is 1.7. For eclampsia/pre-eclampsia it’s 1.7.  And the rate of deaths due to amniotic fluid embolism is 1.1. This demonstrates that while there are still some complications of pregnancy that outrank suicide as causes of death among pregnant and new mothers, suicide is among the leading causes. And more and more states are finding this is true.

Colorado found that suicide is the 3rd leading cause of death in the first year postpartum, ahead of pulmonary embolism and hemorrhage. A 2012 study in the state of Georgia of pregnancy-related and pregnancy-associated deaths found more women died from suicide (8) than from hemmorhage (7), hypertension (4), cardiac problems (4) and embolism (4) during or in the year after pregnancy. A Michigan study of data from 1995-2005 found that deaths due to intentional self-harm (11%) were at a similar rate to amniotic embolism (11%) and greater than hemorrhage (7.1%) and obstetric blood clot embolism (4%). A Wisconsin review found that suicide represented 13% of all pregnancy associated deaths.

We HAVE to pay attention to this. We have to track it better. Something must be done. Here’s how Postpartum Progress looks at it: Would the mother have died if she had not been pregnant or had a baby? Did the suicide happen as a result of the symptoms of a maternal mental illness? If it did, we consider it pregnancy related.

We wish more organizations deeply involved in maternal child health included maternal mental illness and suicide prevention in their programming. So do the authors of this fantastic paper from 2013 called Grand Challenges: Integrating Maternal Mental Health Into Maternal and Child Health Programmes when they stated, “Addressing mental health concerns such as maternal depression could play an important role in achieving the Millennium Development Goals set by the United Nations (three out of the eight goals refer specifically to women and children). However, mental health care remains conspicuous by its absence in large scale global maternal and child health (MCH) programmes.” So. Very. Conspicuous.

You won’t find maternal or pregnancy-related/associated suicide mentioned even once by Merck for Mothers, a 10-year $500 million initiative focused on improving the health and well-being of mothers during pregnancy and childbirth. It’s also not an area of focus in the Bill & Melinda Gates Foundation’s Maternal, Newborn & Child Health strategy. And yet we KNOW the health of children, including their mental health and development, is linked to that of their mothers.

Over my years of advocating for maternal mental health I’ve had more than one person say to me, “I’m sure postpartum depression is important. But there are other maternal health issues that are so much more so. I mean, no one dies from PPD.”

Oh yes they do. Indeed they do. And we can prevent it.

#stopsuicide

Postpartum Depression And Social Media: 6 Things You Need to Know

postpartum depression and social mediaYou might be grateful, if that’s the right word, that at least you struggled with postpartum depression or anxiety in the age of social media. You probably haven’t met anyone in your neighborhood who has had a maternal mental illness. You might not be aware of any friends who’ve had it. But you can find thousands of moms just like you by searching the internet, and that’s awesome. Postpartum Progress started out as a blog (we’re now a full-fledged national nonprofit in case you didn’t know) so we’re big fans of social media.

Still, we believe it’s important to use social media carefully when you’re in the midst of struggling with PPD or related illnesses. Or for that matter, when you are in the midst of struggling with life. Hopping on Facebook or Instagram can make you feel connected, understood and supported. And sometimes it can also make you feel like crap.

With that in mind, here are six things we want you to know about postpartum depression and social media.

6 Things You Should Know About Postpartum Depression & Social Media

#1 – Comparison is the thief of joy.

It’s a known fact that many people present a more idealized version of themselves on social media. There’s actually a term for it now called “duck syndrome.” Duck syndrome means appearing cool and calm as you glide along the surface while at the same time hiding the fact that you are paddling furiously beneath the water, struggling to keep up. If you think everyone else in the world is doing great and you’re the only one who is struggling, you’re wrong. We’re just showing you our feathers and not our duck feet.

Along with unfounded feelings of failure, social media also can create a false pressure to achieve. Say there’s a mama on Facebook talking about how she had postpartum depression and she’s grateful she got help early. She found the exact right treatment and is already better and about to wean off her medication at 8 months postpartum. Your baby, on the other hand, already had her first birthday, you’re miserable, and you’ve only recently reached out for help. Or maybe you’re being treated but now feeling like you should have already weaned off your medication like the mama you saw on Facebook.

Here’s what we need you to do: Stop. STOP THAT RIGHT NOW. (Pretty please?) There is not nor has there ever been one right way to get better. There’s no magic pill or potion or therapy that works in the same way for each person. There’s no correct amount of time it should take you to recover.  You don’t get a medal for quitting treatment early, and in fact it’s not good for you. You do you.

#2 –  Other people’s stress and fighting can affect your mental health, even on the internet. 

Not all of it is unwarranted, of course, but there’s a lot of negativity and anger on social media. Spend an hour on the internet and you’ll no doubt see people arguing back and forth, threatening each other, blocking each other. Believe it or not, the more awareness you have of other people’s stress and upset, the more it can impact your own mental health.

According to the Pew Research Center, “… awareness of other people’s problems is associated with a range of negative outcomes, such as depression. The ‘cost of caring’ associated with awareness of other people’s stressful events may be a negative consequence of social media use because social media may make users more aware of the struggles of those in their network.” In other words, all the outrage and arguing and upset you’re seeing can affect your mental health.

Did you know that stress can be contagious? If you feel like all the personal upset you’re seeing is dragging you down, take a break. It doesn’t mean you can’t be supportive of others. It just means you might need to step back from from it every so often.

#3 – Too much of a good thing isn’t a good thing.

Think about how many people you can touch and see in person on a regular basis. How much do you know about what’s going on in their lives? Every single thing? Probably not. On the internet, however, we get to know lots of people and we end up learning MUCH more about them than we might ever have offline. We see what their likes are, what their dislikes are, what they had for breakfast, what their kid did, what their job is like, what their politics are … the internet is hyperpersonal.

What does this mean for you? You might meet a mom or group of moms online who you connect with because they have a perinatal mood or anxiety disorder at the same time you do. You are all good people. You support each other. You end up adding each other as friends. Months or years later you might see this person with whom you felt very safe and attached saying things on Facebook that upset you. Those things might go against your beliefs, or your political views, or your expectations. Sometimes internet connectedness leads to knowing so much about people that you can begin to feel divided rather than unified.

Try to remember that there is much more to each Warrior Mom than PPD. We can care for each other and love on each other but we are not going to agree on everything. Ever. Try to give as much grace as you can.  And should you need to, remove yourself from more personal connections with people and stick with the maternal mental health-focused groups.

#4 – There are times when all these people end up making you feel more alone. 

Some of us have 3 followers and some have 13,000. Some of us share our experience with postpartum depression on social media and get tons of loving responses, while others share and no one says anything at all. It’s easy to equate your worth with how many followers you have or how many comments of support you receive, but it isn’t healthy.

Maybe people didn’t open Twitter that day. Maybe it was a big news day and their Facebook stream was flooded with memes and too many other things. There is a whole host of reasons why you might not get the support or feedback you expected, but one of them is NOT that you are unworthy.

#5 – Bad advice and unsolicited comments are everywhere.

Not everyone has training on how to provide the best support for moms with maternal mental illness. They don’t know, for example, that you shouldn’t force your own beliefs about parenting styles or baby feeding on someone who is struggling.

We believe you shouldn’t tell a mom that a certain medication, specific natural supplement or one type of therapy is the best way to go and that you know it will work for her because it did for you. We think you shouldn’t expect that every mom you are trying to support has health insurance, or has the finances to be able to afford therapy, or understands or talks about perinatal mental illness in the same way you do in your culture. This is one reason Postpartum Progress works to provide all of its peer support volunteers with a variety of free trainings, such as Mental Health First Aid.

One good rule of thumb? If someone on the internet isn’t really listening to you, is judgmental of you, or acts like they have alll the answers, they’re probably not someone who should be giving you advice.

#6 – Social media can drain away the limited time you have for self care.

If you have a baby, or kids, and are working in the home or outside of it, you already have no time to yourself. If you feel like you have to be on Facebook or Instagram or Twitter nonstop so you can keep up with everything that is going on, you’ll end up using some of your valuable self care time staring at a small, glowing screen instead of doing things just for you. Like sleeping!!

We want you to make sure you prioritize your rest and your nutrition WAYYYY ahead of social media. Some tips: Don’t plug your phone in right next to your bed. If you put it in another room overnight you won’t be tempted to pick it up, and the buzzing sounds won’t prevent you from sleeping. Also, try to put down all smartphones, computers and iPads for an entire hour before you go to bed. It helps your mind slow and calm down so you can rest.

None of this is to say, of course, that you should cancel all your social media accounts and run for the hills. Postpartum depression and social media can work together. Connecting to resources and support online is a great thing and it will remain a great thing. But if you have one of those days, or even a period of time, where it starts to feel like being on social media is hurting more than it helps, step away. Give yourself time to step back and regroup. It’s okay to take time off. We’ll all be here when you get back.